Fact sheet 10-2016
Sharing Patient-gathered Data from M-health Tools
There are growing expectations that selections of data from patient-operated mobile systems become available for health care personnel via electronic health records (EHRs), as are demonstrated in the results (31 countries and 1,130 patients/carers) of PatientView’s 2015 White Paper . This fact-sheet summarizes white papers, reports and literature (2015-2016) related to presenting patient-gathered data in and between consultations.
Sources for knowledge about m-health data integration
Health authorities lack sufficient evidence from mHealth studies, largely because traditional data and reporting standards are not appropriate for the technology . In response, WHO and mTERG have developed the mERA Checklist .
Scientific literature: medical and operational requirements for m-health implementation:
- Health personnel training [4, 5]
- IT system flexibility [6, 7]
- Stakeholder collaboration [8-10]
Options for collecting & sharing m-health data
Few formats or standards are available for transferring data between m-health tools and health services. However, preliminary concepts exist:
- EU Commission’s Code of Conduct: privacy for m-health apps . Proposal of a “multi-stakeholder governance model” to enforce compliance with EU Data Protection Law.
- Few cloud-sharing protocols suggested by research studies, e.g. 
- Models for m-health data integration .
Commercial apps meet some of the demands
- App developers aim to support clinicians’ efforts to diagnose, treat and schedule their patients - with “follow-up” projected to be the greatest impact area .
- Some commercial diabetes apps provide data-sharing formats for patients and clinicians, e.g.:
- DiaSend ,
- Glooko ,
- Dexcom 
- Other apps, such as Apple HealthKit, are partnering with health systems, e.g. an Epic client, Duke Medicine, to pursue m-health integration .
- What patients and carers need in apps - but are not getting. 2015, PatientView: https://ec.europa.eu/digital-single-market/en/news/study-what-do-patients-and-carers-need-health-apps-are-not-getting.
- Commission, E. Which priorities for a European policy on multimorbidity? in Which priorities for a European policy on multimorbidity? 2015. Brussels: European Commission.
- Stroulia, E., et al., Home care and technology: a case study. Stud Health Technol Inform, 2012. 182: s. 142-52.
- Wang, J., et al., Smartphone interventions for long-term health management of chronic diseases: an integrative review. Telemed J E Health, 2014. 20(6): s. 570-83.
- Nielsen, J.A. and S.A. Mengiste, Analysing the diffusion and adoption of mobile IT across social worlds. Health Informatics J, 2014. 20(2): s. 87-103.
- Nielsen, J.A. and L. Mathiassen, Interpretive flexibility in mobile health: lessons from a government-sponsored home care program. J Med Internet Res, 2013. 15(10): s. e236.
- Yellowlees, P.M., Successfully developing a telemedicine system. J Telemed Telecare, 2005. 11(7): s. 331-5.
- May, C.R., et al., Integrating telecare for chronic disease management in the community: what needs to be done? BMC Health Serv Res, 2011. 11: s. 131.
- Huang, Y.-C. og Y.-L. Hsu, Social networking-based personal home telehealth system: A pilot study. Journal of Clinical Gerontology and Geriatrics. 5(4): s. 132-139.
- Commission, E., Code of Conduct on privacy for mHealth apps has been finalised, in Digital Single Market: Digital Economy & Society. 2016: https://ec.europa.eu/digital-single-market/en/news/code-conduct-privacy-mhealth-apps-has-been-finalised.
- Thilakanathan, D., R.A. Calvo, og S. Chen, Facilitating Secure Sharing of Personal Health Data in the Cloud. 2016. 4(2): s. e15.
- Ehrler, F.e.a. A comparison of four models: use of patient-generated mHealth data for patient care. Swiss Medical Informatics, 2016. 32.
- Research2guidance, mHealth App Developer Economics 2015: The current status and trends of the mHealth app market, in mHealth Economics Research Program. 2015: Research2Guidance.com.
- Diasend. 2015 [sitert 2015 25/09]; Tilgjengelig fra: https://www.diasend.com/no/.
- Healthcare Equipment and Supplies: Company Overview of Glooko, Inc. 2015, Bloomberg L.P.: Bloomberg Business.
- Dexcom Inc (DXCM) Details. 2015 [sitert 2015 25/09]; Tilgjengelig fra: http://www.bloomberg.com/research/stocks/snapshot/snapshot.asp?ticker=DXCM.
- Siwicki, B. Duke liberates Epic EHR data with Apple HealthKit and FHIR: Director of mobile technology strategy Ricky Bloomfield to discuss integration benefits at HIMSS16. 2016.