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Full Flow of Health Data Between Patients and Health Care Systems

Other contacts/project members

  • Astrid Grøttland,  , phone 928 87 111
  • Ragnar M. Joakimsen, , phone 952 71300

Background

People are using mobile technologies more and more, such as mobile phones, apps, tracking devices, sensors and smartwatches that gather useful health related data. However, Norwegian electronic health record (EHR) systems do not allow integration of such patient-gathered data, and these systems are far from being compatible with each other. The suggested research project has every necessary component to gather, process and disseminate new knowledge to inform Norwegian industry, health authorities and the research community. Our comprehensive team has collaborated for over 10 years to build a representative and mature patient tool, the Diabetes Diary, which will be used as the basis for the patient system. Our project group includes the main primary and secondary EHR vendors in Norway (DIPS, Infodoc, Hove Medical Systems), a university hospital to conduct relevant testing, four university affiliates, a strong team of professors and senior researchers and two highly qualified candidates for the PhD positions.

Project description

Existing research and knowledge in this area is mainly focused upon how decision support systems should be designed for health care personnel, while self-management systems are directed toward patients. Research around the first mentioned, including archetypes as a way to structure and standardize data, is substantial while the latter, patients systems, are still being developed. By suggesting research regarding how these two systems can be integrated based on real patients, health care personnel and systems, we expect to unveil a vast amount of new insight as well as identifying new problems for future research. The approaches we have chosen will place a large emphasis on user-involved design, development of archetypes as communication enablers and for information retrieval to measure effects, agile development methods with rapid check-ups with all user groups, and solid documentation of both medical and economical outcomes of the tested concepts. This approach will address issues regarding feasibility and interoperability, namely how the patients and health care personnel prefer the solutions, how they technically can be implemented, what are the economically and health outcomes, and how can these concepts be used internationally.

Together with our technical, economic and medical competencies, we will build upon our expertise on national level archetypes, the security of technologic communication for medical purposes and economic understanding of how mobile health tools can and should be integrated into a medical system in a way that benefits not only patients but health actors too.

Purposes

The project aim to address the following four hypotheses:

H1: It is possible to develop solutions for enabling full flow of health data between patients, primary health care EHRs and secondary health care EHRs.

H2: Novel utilization of archetypes to structure the shared data from patient tools will enable more effective and user-friendly communication of information between all health actors: patients, primary health care and secondary health care personnel.

H3: The developed concept of communicating and integrating more detailed and relevant patient-gathered data into the medical system will result in decreased health care spending.

H4: The developed concept of communicating and integrating more detailed and relevant patient-gathered data into the medical system will result in improved health outcomes.

Project partners

  • A UNIVERSITETSSYKEHUSET NORD-NORGE HF

  • UNIVERSITETET I TROMSØ - NORGES ARKTISKE UNIVERSITET

  • Czech Technical University in Prague

  • Aalborg University

  • NTNU - Trondheim Norwegian University of Science

  • DIPS ASA

  • HOVE MEDICAL SYSTEMS AS

  • INFODOC AS

Financing

Norwegian Research Council (NFR), through the IKTPLUSS programme.

More information about the project

https://www.forskningsradet.no/prosjektbanken/#!/project/247974/no


Siden er sist oppdatert 13.11.2017

Project category

Welfare technology

Project period

2016 - 2019

Project manager

Eirik Årsand Eirik Årsand

Project participants

Miroslav Muzny Miroslav Muzny

Astrid Grøttland Astrid Grøttland

Meghan Bradway Meghan Bradway

Gunnar Hartvigsen Gunnar Hartvigsen

Håvard Blixgård Håvard Blixgård

Alain Giordanengo Alain Giordanengo